Join Our Study!
We’re working on a project to better understand how children and young adults with Juvenile Idiopathic Arthritis (JIA) do over time. Our goal is to understand who is likely to have more severe disease, so we can better tailor treatment to each individual’s unique needs.
We are collecting patient-reported information (e.g. symptoms you experience, your quality of life) over time for those with JIA. This kind of information is incredibly valuable because it gives us insight into what life with JIA is really like.
By tracking this data, we hope to better:
● Understand how JIA affects children and young adults over time
● Learn which treatments work best in real life
● Make sure that patients’ voices are included in future care decisions
· Parent or guardian of a child with JIA who is under 18 years of age
· Adults between18 and 20 years old who have JIA
You/your child will participate in an online survey that should take about 5 minutes to complete. You will receive requests to complete surveys monthly, over a 12-month period, through email. As a token of our appreciation, we provide you with a $5 gift card for each completed survey up to a total of $60 for 12 surveys.
You can email the research team at leapjia@childrens.harvard.edu
You will complete questions confirming your eligibility to participate and sign a consent form. To begin, click the button below.